my 4yo is seeing a Kidney specialist -UPDATED!

QUOTE(pumpkintwins @ Jan 26 2008, 08:45 PM) [snapback]591388[/snapback]
Hi,

I don't know if this will make you feel any better, but I was diagnosed wiht IgA Nephropathy at 21 yrs old after they found I has protein in urine during a physical. I am now 33 and have not had any problems, very healthy and active my whole life and only trace amounts of protein leakage. Even through 2 pregnancies and one being twins I still didn't spill that much. So hopefully this mild form of kidney nephritis will not effect much the quality of your dd life in any drastic way.



Thanks for that... yes I was told she more than likely would go on to live a normal life without many complications. Thanks for your story.

 

QUOTE(7Ms @ Jan 26 2008, 02:43 AM) [snapback]590302[/snapback]
Hey there, well it isnt always bladder infections... whenever she has ANY infection ie strep ear nose... she will pee higher amounts of blood, but she pees a little blood all the time. We are having her urine tested anytime she gets sick.

We are actually seeing a DIFFERENT kidney specialist, but here in MT there isnt a pediatric specialist, so she called her friend at Duke who is, and apparently this is what HE thought. I agree with you though, I think he was rather hasty as he only READ her case file, our other Dr is still following up pretty closly. But I still would love to hear all the info you have on the kidneys.


Have they done ultrasounds and a VCUG? That will tell you alot. How the kidney are working(even if they have drawn blood) and if they are some how damaged. What about sores in the bladder that are causing the blood in the pee? That can happen when the bladder isn't being drained all the way. They can see those things with the VCUG. I think that is the way to go first. If I was you I would call and get the doctor to order those tests because it will make you feel better. It will also give them more information.

Let me know what else I can help with. I really know the kidneys very well and different tests to help with them.

Erin

 

QUOTE(motherof2sets @ Jan 28 2008, 12:57 PM) [snapback]593598[/snapback]
Have they done ultrasounds and a VCUG? That will tell you alot. How the kidney are working(even if they have drawn blood) and if they are some how damaged. What about sores in the bladder that are causing the blood in the pee? That can happen when the bladder isn't being drained all the way. They can see those things with the VCUG. I think that is the way to go first. If I was you I would call and get the doctor to order those tests because it will make you feel better. It will also give them more information.

Let me know what else I can help with. I really know the kidneys very well and different tests to help with them.

Erin



Yep we did all that 2 yrs ago, but not at this last go round of tests. We will just be playing the waiting game for the next couple of months. Thanks for the support.

 

Okay RaeLynn has yet another UTI, she had her urine tested on Friday, but our small hometown clinic did not get her results to her doctor until Monday afternoon (when they finally called to request them... GRRR) anyway on antibiotics again (after about 2 wks off of them) and her fever seems to be gone today. She hovered around 102 for four days.. WHILE ON TYLENOL/MOTRIN!! I dont know our next step after this. I will keep you all updated... thanks for the thoughts and prayers.

 

:hug99: Poor Raelynn. :hug99: I hope you get what the next step is soon so she can not be sick anymore. :hug99:

 

The doctors next step should be antibotics once a day to prevent them from happening.

After the 10 days of full antibotics.

Erin

 

Sending happy thoughts and prayers to Raelynn :hug99:

 

QUOTE(motherof2sets @ Feb 5 2008, 01:12 PM) [snapback]606987[/snapback]
The doctors next step should be antibotics once a day to prevent them from happening.

After the 10 days of full antibotics.

Erin




Thanks... I was thinking the same thing. She will be on two doses a day for the 10days.