The Anything Thread

Discussion in 'General' started by Twinrific, May 31, 2013.

  1. Twinrific

    Twinrific Well-Known Member TS Moderator

    We haven't talked in ages! Let's check in. How is everyone and what are you up to currently?

    I am super busy with Evan and enjoy him so much! He is flourishing and growing so fast. Makes me super proud. Taking him for his first haircut in a few hours which has me all emotional! He now points out everything saying "daai?" (That?) i.o.w asking what EVERYTHING is, very very curious little man. He's also formed the habit of regularly running into my arms with a big hug which makes my day, every time. He is adorably adventurous and funny and sweet and perfect!
     
  2. TwinPeshi

    TwinPeshi Well-Known Member

    November 2012 was a very long month ;) Nothing new here - I'm still plodding along with the same things.

    Why cut it then? :p His hair looks really short to me ;)
     
  3. Twinrific

    Twinrific Well-Known Member TS Moderator

    It was fairly short but long enough that he got all types of sticky stuff stuck in it and it's a nightmare to get out. He still looks cute with the shorter hair. Then again he'll always look cute to me ;) He just looks too grown up now!
     
  4. Twinrific

    Twinrific Well-Known Member TS Moderator

    Adrian looks like we're the only two surviving 19+ members.

    Joyce? Hope you're enjoying Summer! Not long now before you and Gerda will meet up. I'm so jealous!

    Codie? Hope your health is better. Been thinking about you!

    Jackie, I'm sure you have your hands full with the kids. It's Summer break there right? Hope you're enjoying it!

    Richard say hi :p
     
    1 person likes this.
  5. TwinRichard

    TwinRichard Well-Known Member

  6. Twinrific

    Twinrific Well-Known Member TS Moderator

    :lol: Good to see you can still follow directions Richard :p
     
  7. starmaker

    starmaker Well-Known Member

    Finally doing well again after some time. I am not sure if you know but I lost my grandmother (mothers side) in December and unfortunetley lost my other grandmother (fathers side) in May and I must admit it took a harder toll on me than I expected it. The relationship with specifically my mothers family and more importantly my grandmother was really complicated so alot of things will remain unsaid and alot issues will stay unresolved. And just when I thought things were looking up again and I was dealing with it all the doctors of my other grandmother decided to no longer give her any medical help anymore in a process they call "versterven". They had their reasons for this and my father and uncle agreed with it but let's just say that it is a very difficult process to go trough with a loved one. She still lived for another 10 days before she passed away and was buried on her wedding day (May 15). It was a difficult few weeks but I am just thankful that it is over and done with in a way. The first week after we buried her I found very difficult but overall there is now some sense of peace and relief that it is all over. No grandparents to lose anymore.

    On a happier side note, I am getting baptized next sunday! I am very excited about it and I must admit I am nervous as well but very happy that it's finally
    going to happen :)

    BTW Summer, there hasn't been to many great summer days unfortunetley. This week it's great weather though, am enjoying it despite having to work ;)
    Hoping for a long summer with many more great days, I hope your winter isn't to cold!

    Also I am so excited to be meeting Gerda! Getting closer to the date now, when are you leaving for Europe Gerda? I was actually cleaning up some stuff yesterday and found the card you send me after your wedding, I don't know if you remember what was on it? It basically said that some day it was going to be you and CP flying to meet me (don't know the exact wording right now) but that amazed me considering your europe trip :D
    Hope you can come here some time as well Brenda!
     
  8. TwinG

    TwinG Well-Known Member

    Hi Everyone

    All has been good on my side, busy but happy at work and planning our trip :)

    Joyce I am really so so sorry about your grandparents, so much sadness to endure in such a short time :hug: :hug: Wish I could just make it all better for you! Breaks my heart that you need to go through yet another loss :hug:

    Congrats on being baptized, I'm glad if there is something for you to look forward to and enjoy :D

    I can't remember the letter exactly but it is strange and wonderful how things come together, after almost 12 years knowing each other we finally get to meet! I'm ridiculously excited about it... we now just need to convince Adrian, Richard, Kendra and Bren to join us (Bren you and Evan have your booked space in my suitcase :p)
     
  9. Twinrific

    Twinrific Well-Known Member TS Moderator

    Joyce, again my deepest condolences for your loss. I am so sorry. Wish I could give you a hug IRL. I am glad you are doing better, I know grief is a long process and will keep you in my thoughts. You know I am always here if you need to talk. :hug:

    I am glad you have something you are looking forward to. Congratulations! I hope it is a special day for you!

    Seriously, I've never been so jealous in my life :lol: but my turn will come. You two should take lots of photos. Someday we should hold a Twinstuff Twins reunion or something and win the lotto and get together ;)
     
  10. Twinrific

    Twinrific Well-Known Member TS Moderator

    Okay let's see if we can get some talking going! A new QOTT: What would be your ultimate home? A big house, small apartment, cottage? etc Any specific place you'd want it to be located?

    I don't want something too big. 3 bedrooms maximum. One bedroom will be a play area for Evan. I don't like too much space because it just collects junk. My ultimate is a place with a very big yard with lots of area for Evan and Bruto to explore. Currently the location? Dream areas would be Scotland, Switzerland or Cape Town :)
     
  11. TwinRichard

    TwinRichard Well-Known Member

    Ideally a (relatively) small house (cottage I suppose) somewhere isolated but near an airport (I know that can seem like a contradiction :p).
     
  12. Twinrific

    Twinrific Well-Known Member TS Moderator

    I.o.w a countryside cottage with your own airfield and airplane? Sounds reasonable :p
     
  13. TwinRichard

    TwinRichard Well-Known Member

    Doesn't need to be my own or with my own aeroplane :p

    Fair Isle in Scotland is an island with an airport and flights to the Shetlands. Population of 69 people ;)
     
  14. Twinrific

    Twinrific Well-Known Member TS Moderator

    I was just messing with you ;) Fair Isle looks beautiful and wow 69 people? That certainly qualifies as remote!
     
  15. TwinPeshi

    TwinPeshi Well-Known Member

    The same as Richard except I think it only appropriate that we have two houses, one in the northern hemisphere and one in the southern hemisphere (Niue perhaps...).
     
  16. Twinrific

    Twinrific Well-Known Member TS Moderator

    I hear Cape Town in the Southern Hemisphere is also nice... Maybe not remote but it has an airport!
     
  17. TwinRichard

    TwinRichard Well-Known Member

    It is unfortunate Robben Island has the history it does because if it didn't have all the buildings and other infrastructure needed to run a prison it would be quite appropriate.
     
  18. TwinG

    TwinG Well-Known Member

    The house I don't mind as much, but I've always thought of the surroundings. I love water and mountains so a cottage on a lake with a mountain behind me sounds perfect. Although on the farm, even though we don't have mountains we do have big trees so I'm very happy with my home, it's ideal and perfect for me :)
     
  19. Twinrific

    Twinrific Well-Known Member TS Moderator

    I agree Geks a lake would be nice. Imagine going out in a canoe every morning!
     
  20. starmaker

    starmaker Well-Known Member


    My ideal home would be a small detached home surrounded by nature! But that is just never going to happen in Holland, unless I win the lottery ;) Even a terraced home is way too expensive for a person alone. Prices for buying homes here are just unbelievable expensive, not to mention waiting lists for renting homes. To get a rented home in Rotterdam you need to wait a minimum of 5 years or look for something in the private sector but that's even more expensive. Sorry, I'll stop my rant now :p

    I would settle for any home that either doesn't have neighbours or a good isolated house so you don't hear said neighbours. I live in a flat-appartment and I can honestley hear almost everything
    my neighbours do, especially the upstairs neighbours. It doesn't help that they are a loud bunch either, I always hear their tv or music. These days I have developed a tendency to watch or listen to everything on my laptop with earphones in. So anything where I don't constantly hear my neighbours sounds like an ideal home to me ;)
    I would definetley love to move to at least a smaller city where there's a bit more calm and quiet, just waiting till I get my drivers license :)
     
  21. Twinrific

    Twinrific Well-Known Member TS Moderator

    It's sad that housing is so difficult to find in the Netherlands. I also value privacy a lot and dislike noise pollution so I can imagine it's frustrating living with such noisy neighbours!
     
  22. Code

    Code Well-Known Member

    Sorry for the late reply, things are crazy here and sadly not in a good way. On the 10th of May I had another surgery for excision of endometriosis, which had spread to new areas then where it was in September, including on one of my ovaries and it was discovered that my bowel was connected to my abdomen wall due to adheasions, there were more but that was the most serious adheasion. The specialist also looked around for causes of my problems with nil success unfortunately. After the surgery my bladder shut since then which resulted in having 10 permanent catheters between then and the 9th of July because of multiple failed trial voids.

    On the 3rd of July I finally went to see a internationally renowned pelvic pain specialist, unlike the other specialists I've been seeing he and his exceptional team instantly made me feel comfortable with them, unlike everyone else they didn't try to push medications on to me and send me away to try and deal with it on my own. They straight off said that they wanted to get me off the narcotics I was taking and help me, so much so that they actually wanted to admit me to the hospital there and then but unfortunately I didn't have anything with me so it was organised for the 6th so I had time to get things packed and ready as I was told I would be there for a minimum of a week. I had already gotten myself off of fentanyl patches and ordine in May and had been trying to use distraction and guided meditation to not focus on pain or trying to use medications but because of how much pain I've been in I was using 120mg oxytocin, 75mg amatriptalan, 1800mg gabapentin, 100mg oxycodone and valium daily. The first week in hospital I was on a ketamine infusion while the oxytocin, amatriptalan and valium were reduced until they were not being used. During this time my pain baseline increased and I struggled to deal with it, I also had a breakthrough and expressed a lot of things that I had been holding to myself out to the doctor on the team who was looking after me. I found that letting go of everything helped me realise it wasn't my fault and I deserved to get the help from these specialists. They took the catheter out and decided to try in and out catheters to try resetting my bladder over a week and a half to no success. During the second week I started to get physical and internal therapy, though the internal has been put off for now hopefully I'll be able to start it again soon. They started me on methadone 30mg, cymbolter 60mg daily, they kept the remaining medications from above and introduced and seroquel for anxiety as needed. I know it sounds like a lot of medications but unfortunately it is a great routine verses me trying to figure out what works on my own. On the 16th I had a superpubic catheter inserted because my bladder was not doing anything even with the in and out catheters trying to help it. On the 20th I was discharged and went to my parents house to recover and spend time with mum for a week before returning home to my new apartment that I moved to in June in hopes of getting my bedroom sorted but as my life goes my body had other ideas.

    On the 28th I woke up to excruciating pain, extreme hypersensitivity and super fatigued to the point where I couldn't handle it and I can normally handle pain especially since my daily baseline doesn't drop below 8/10, this was over a 10. Chloe had to help me do everything including gettingoout of bed and going to the bathroom to eventually forcing me to go to the hospital where I spent the night in the short stay area waiting to find out what was happening. During my wait a nurse decided to take out the stitches that were holding the superpubic catheter in place after I had told her that they were the only thing holding it in. Monday night I finally got to the ward. On Tuesday I accidentally pulled it half out since nothing was holding it in. My urologist came to see me and said that she was going to take me into surgery the next day to change the temporary superpubic catheter to a permanent one and do a cystocopy to see if they could see a reason why my bladder isn't working, unfortunately they seen nothing. Last Friday I was discharged on oxybutynin for bladder spasams and no answers for why my pain levels have increased. It's like a wave, it hits me full force.

    It's really strange that since my ureter was cut off I have been having bladder problems, either I was going to much or not enough between September and May until it stopped working. I've been told now that I may have this catheter in for months or I may need it for the rest of my life. It's the same way for the chronic pain syndrome, chronic fatigue syndrome and the hypersensitivity. Along with this I've been diagnosed with multiple pelvic floor disorders, nerve problems and multiple doctors and nurses have mentioned fibromyalogia.

    It's been a rough time for sure. I'll spend some time tomorrow catching up on what everyone has been up to! Hopefully you all are doing well! Kind regards.
     
  23. Twinrific

    Twinrific Well-Known Member TS Moderator

    Codie I am so sorry things have escalated so much for you. It must be very very difficult. I'm glad however that you have found a specialist you are comfortable with. I sincerely hope you'll be able to live pain-free soon again and they can figure out something for your bladder. Thinking of you. Wishing you strength and peace :hug:
     
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