no controversy, promise

boys just got upped to 7.5mg solutab in the am to now taking 7.5mg solutab at night b/4 the last feed. previously it was prevacid am, zantac pm....what is it about 6 days to see improvements?

how many of you are on the full 15mg dose?? do you like it better than say prilosec??

 

This is off-topic and most likely not appropriate for me to post this here - but have you considered apologizing for the horriblly cruel Special Olympics joke you made in your other thread? Do you realize just how offensive that was or do you just not care?

I won't say a lot, but I will say this:

I have a 30-year-old brother who has severe mental retardation and cerebral palsy. His lungs collapsed when he was born at 35 weeks (sound like a familiar gestation? Like my brother, your boys (and my boys) were born at 35 weeks) and he died. His brain went without oxygen for 3-5 minutes and due to this, he is developmentally 9-12 months old. He does not talk. He wears diapers. He cannot feed himself. He cannot protect himself from someone who wished to do him harm. He wouldn't know to get out of a burning building. He is totally and completely dependent on others to care for him, love him, and provide him with a good life. He will never know what it is like to have a girlfriend, get married, have children and grandchildren of his own - he will never get to experience all of the wonderful opportunities life has to offer. Boy, this just sounds like a barrel of laughs, doesn't it?

And thankfully, he will never understand "jokes" like you made about Special Olympics. He'll never realize that people are still so cruel and unkind about a matter that simply IS NOT FUNNY. So, please, the next time you are about to make such an insensitive, mean joke - think about what you are saying before you say it. You don't know what the future holds. Life can change in a blink of an eye, like it did for my family.

My family would LOVE for my brother to have the ability to compete in Special Olympics. It would be worth a lot more than our time.


Mods, I'm sorry, but I could not let this pass. I would have addressed this in the peas thread, but it was closed before I was able to read it.

 

Oh Im so sorry... EVERY life has value. Every member of society has something to offer. No matter how brief they are with us, or how unrecognizable some might think they are

 

Jori, thanks. Both of my twins have medical issues, and I can't imagine them any other way. I'll baby them as long as they need.

 

I just finished reading the infamous "peas" thread. I don't want to add to the controversy, but I have a family member that has Downs Syndrome and participated in Special Olympics I felt that I needed to say something.

I have read most of your previous posts about varying topics...and I agree that being a new mother is difficult and you worry about everything. Being a mom of twins is much the same in that the twin world is as overwhelming and just as new as the first baby. I read everyone's responses to you and as I was reading the "peas" thread...I was thinking that everyone was being just a little too hard on you. and THEN you had to go and make a rude, offensive and inappropriate joke about special needs children.

I think that while you and your DH may be able to joke like this with each other...in a public forum devoted to mothers, children and support for both it is probably not the place to make that kind of joke. You have to remember that alot of our babies were born early, even did stints in the NICU and BY THE GRACE OF GOD came out the other side with no major issues. But not everyone that is on this forum is that lucky -and jokes like yours are not appropriate and are most definitely insensitive.

The children that participate in Special Olympics are beautiful, wonderful miracles that deserve as much respect and kindness as you are expecting from all of us about your boys - in fact, I think they deserve more. It is obvious that you have never spent any time with any of these children or else you would see what a beautiful gift from God that they are and you would understand the incredible amount of support, understanding and love that not only they need, but also the parents and families.

I hope you think twice next time before making any kind of joke here or anywhere else.

Niki

 

Just a reminder to please stay on topic. Anything else should really be said in a pm. Thanks!

 

To bring this thread back to its original topic...Brandon has moderate reflux and he was prescribed 15mg of prevacid from the get go. His pedi even said that sometimes, when reflux is severe, they have to raise the prevacid dosage for some babies. So I was surprised that it took your GI or pedi this long to increase your babies' prevacid dosage considering that their reflux was pretty severe. I hope the increased dosage works great for them.

 

was your dose cut in half like mine or the full 15mg given at once?
and how long before you saw improvements with the stronger dosage and did it help the feeds go any faster?

thanks for your response.

 

No, neither pedi that we saw (there are several in the practice) has recommended that we divide up the dosage. The instructions were to dissolve 1 solutab in 1 tsp of water and give to Brandon. I've since started just breaking the tab into 2 or 3 pieces and placing back in his cheek (holding it there for several seconds to dissolve), because it seemed like so much of the solutab powder was otherwise stuck to the inside of the syringe. Brandon LOVES the taste of these solutabs though and sometimes gets mad that he only gets one, LOL. I think it took a few days before we saw improvement, but the prevacid definitely made a big difference. Brandon has always been a slow eater though, so the prevacid didn't really make him take his bottle faster (maybe a little faster but not much).

 

Are your kids on formula?? If so what kind? Sorry I never come in her but controvery drew me in.

Zoe had out of control reflux and was on everything under the sun. The only thing that got in under control was Nutramigen (sp) and the Prevacid (peppermint smelling medication) she absolutlyhated it. Once she got the hang of that and was ready to move onto foods and stuff like that she pretty much only liked homemade sweet potatoes, goldfish crackers and cherrios. When I switched to milk she was lactose intolerant and could only do soy.

Reflux is a very nasty thing and it took Zoe over 2 years to grow out of. Once she got so dehydrated she had to be hospitalized.

 

Ryley also suffered from severe reflux from 7 weeks up until 9 months. Our Pedi had us giving him prevacid and Zantac to keep the reflux under control. I think around 5 month was when our pedi had us start giving him the whole 15mg prevacid solutab dissolved in 1tsp of water 30 minutes before the first feeding of the day (usually around 7 am, so I would try to give it to him while he was still asleep, otherwise I felt horrible making him wait the 30 minutes before he could eat if he woke) and at night, 30 minutes before the last feeding, our pedi had us give him the Zantac. This regimen worked very well for him.

 

We also had to use Nutramigen formula and 2 different kinds of oral meds. It was so long ago I can't remember the names of them.
All 5 of my children needed meds but not all for the same length of time.
My twins were able to get the benefit of my breast milk along with the meds but only because I changed my whole diet. No beef soy, dairy, eggs casing or whey. Sadly I did not have the energy to do that with my triplets.

I hope you can get it all figured out