Monoamniotic Twins

Is there anyone currently diagnosed with Monoamniotic twins? I'm 9 weeks and just found out I'm expecting mono-twins. I did some research and it is a very scary situation. I'm afraid to lay in certain positions fear that I might cause the twins to get tangled or compressed, afraid to exercise or really do much of anything.

 

Try not to read too much on the net, it will scare you. :hug99:

I know there are several women here who have gone through mono/mono pregnancies or are going through them right now. I know there are a lot of risks and scare factors, but there are also many many successes.

I'm sure you'll find lots of support here.

 

Congratulations on your twins! I'm sorry you are dealing with the fears of a mo/mo pregnancy. There are quite a few women here on TS that have successfully delivered mo/mo twins, including one who didn't know they were mo/mo until she delivered at 39 weeks. Definitely visit the boards at monoamniotic.org because they are such a support for those going through a mo/mo pregnancy. Congrats again!

 

On addition to what has already been posted... a majority of momo's that are diagnosed, are diagnosed incorrectly. As you learn about the different paths and plans ahead, we will also cross our fingers and hope that a tiny, thin membrane just may show up after all.

I was between 15 and 20 weeks before that darned thing finally came into view for a moment.

 

I just had MO/MO twin girls. I held out hope that I was misdiagnosed up until about 20 weeks. BUT the girls are OK - still in the NICU. 33 weekers....

The one sac and one placenta thing is a little scary - but the website monoamniotic.org was a very helpful and supportive site for MOMO moms.

I was in the hospital being on 24/7 monitoring form 26 weeks til 33 weeks.....PM me if you have more questions.

 

I'm hoping you were misdiagnosed. Alot of times they can't find the membrane until later. Ours wasn't until after 13 weeks and 3 techs and even then barely. Up til 20 weeks they still had trouble every week. Maybe they will find it you are still early yet. I wish you the best however it turns out.

 

They thought my boys were also monoamniotic but they were able to find the separating membrane. It was always tough to find and they only ever saw it at the peri's office- my ob's machine could never pick it up. You're very early so I'm hoping for a misdiagnosis as well, though as you've already heard there are a lot of success stories! Good luck and congratulations on your twins!

 

My boys had the tiniest, thinest membrane, and to this day they still aren't sure it existed. They are now 3 and insane, so hold your head high Momma! Lots of good thoughts sent your way!

 

MOMO twins cannot be dx at 9 weeks.. 11 weeks is pretty much the soonest a membrane can be seen. Mine was terribly hard to find the entire pregnancy but it was there and we saw it at 13 weeks. Doctors worry people unnecessarily.. it's too early. Chances are GOOD that there is a membrane. Try not to borrow trouble just yet.. You'll be in "trouble" soon enough when those 2 bundles are in the house!

It will be fine. Be seen by a Perinatologist to monitor for TTTS. Don't worry about the MOMO thing until 14 weeks when they do not find a membrane.

 

Hi there, my girls were mono's. It was a really stressful pregnancy but we had a successful outcome. www.monoamniotic.org is the best place to get information. At 9 weeks misdiagnoses are very common (up to 85%) so hopefully that membrane is there just waiting to be found. Feel free to PM me if you have other questions.

 

QUOTE(ivfbound078 @ Apr 13 2008, 12:19 PM) [snapback]719356[/snapback]
MOMO twins cannot be dx at 9 weeks.. 11 weeks is pretty much the soonest a membrane can be seen. Mine was terribly hard to find the entire pregnancy but it was there and we saw it at 13 weeks. Doctors worry people unnecessarily.. it's too early. Chances are GOOD that there is a membrane. Try not to borrow trouble just yet.. You'll be in "trouble" soon enough when those 2 bundles are in the house!

It will be fine. Be seen by a Perinatologist to monitor for TTTS. Don't worry about the MOMO thing until 14 weeks when they do not find a membrane.


Completely agree- My dd was told by her ob at nine weeks that she should consider termination because they were mo/mo.. At 14 weeks the peri found a very thin membrane.. She changed OB's and kept the peri!!
Has a u/s been done on a high resolution machine?

 

We didn't see a membrane at 8 weeks or 12w! We finally saw it at 16 weeks. Then we were diagnosed with TTTS, so, if you have mo/di or mo/mo twins, make sure you are moinitored closely! Don't stress yet - only 1% of ID twins are mo/mo. 70% are mo/di, and 30% are di/di. The odds are in your favor that there is a membrane there. I'll be hoping for you!

 

I am expecting monoamniotic boys. I am currently 31 weeks and I have been under constant inpatient monitoring for 5 weeks. I will deliver at 34 weeks, however some people deliver at 32 weeks. What everyone else has told you is exactly what I would say. Most of the time the initial diagnosis is wrong. However, if your babies are monoamniotic it is not the end of the world, just make sure you get the medical treatment you and your babies deserve. You do need to see a specialist to have a high resolution ultrasound done. I have had to fight to get inpatient. You definitely need to go to monoamniotic.org. The women on that site are angels and have helped me tremendously. Feel free to pm or email me.

 

As Taine has already mentioned, http://www.monoamniotic.org/ has lots of good information...

 

My girls were mo-mo twins. I delivered at 31 weeks. They spent 6 weeks in the NICU, and are very healthy now. I refused to read about it online, other than monoamniotic.org. My doctors discouraged researching it, due to my anxiety. I prayed and everyone around me prayed. I was in the hospital for 5 weeks prior to their delivery. The doctors wanted to deliver at 32 weeks, but one of my girls needed to come on out. I will keep you in my thoughts and prayers!!!

 

I agree with the others, 9 weeks is a little early to confirm this. We didn't see a membrane between our twins until 16 weeks! And even then, for a second.

Like others said, there are lots of mo/mo twins out there - but also remember that only 1% of ID twins are mo/mo. Chances are that there is a membrane there. Maybe not, but the odds are on your side. I worried at every u/s if we would find one. We did, and we had mo/di twins with TTTS, (still scary) but, there was a membrane there!

Also, I think the odds are a bit better for a membrane if you saw two yolk sacs. Although I could be wrong about that.

Good luck and keep us posted!

Jenny

 

Nice to see ur reply.myself tested for momo-twins after 8th week.I am worried about the growth and health of the babies...? If you know any sucess stories please add strength to me.........

 

My twins were thought to be momos, but my peri found a thin membrane at 12 weeks. It's really difficult to see, so I wouldn't hold tight to that diagnosis until you see a specialist. As for the laying in certain positions, they are SO SMALL right now. I doubt your movement will affect them in that way (I'm no Dr, but I think they would have to be bigger to do some damage).

And stay off the internet, with the exception of the sites recommended here. I did one search when I thought I had momos and what I found sent me into tears and I did nothing but worry until our next Dr visit. This is a great place for information and inspiration, so post away!

 

Okay-------- we REALLY need a sticky at the top about the MIS-diagnosed MO MO twins soooo early in pregnancy!!!

Like are there 2 yolk sacs?? and some other statistics.. Can someone do this please????

These poor women are getting nervous WAY too soon!!!

Plus, this same thing keeps happening, I think it would be GREAT to have an immediate resource at the very top for everyone who is told his soo early in pregnancy... Stories of hope, etc.

Thanks!

 

I'm 16 weeks and my OB told me last week that I have mono/mono twins. I go see a perinatologist on Aug 12th. Sort of hoping that they find a membrane, but preparing for them not to because they only found one baby at 7+ weeks and the u/s diagnosing this was done at 15 weeks. We'll see though. There's still a chance. I've gone to that other website they mentioned here and it is helpful to read, but you can't register. I've tried every day for a week and contacted them, but there's some sort of error. I'm still learning about all this too. Hoping your diagnosis proves wrong.

 

I was diagnosed with Momo’s at 16 weeks. After countless ultrasounds at different levels they have yet to find a membrane. Its a scary thing to be told the risks that come with Momo’s. But as early as you are in your pregnancy I wouldn’t worry much, misdiagnoses happens quite often with these types of pregnancies. I hope the best for you and your little bundles.

Just to give you a little info if you should find out they are infact momo’s. LOTS of women have healthy babies, though you will have them early, gestation for momo’s only goes to 34 weeks, Rarely will you ever go past that due to cord compression. Most women do inpatient monitoring starting as early as the 24th week or as late as the 28th week and stay in the hospital until they deliver via C-section. The biggest worry with momos is cord entanglement and cord compression. Neither of which you can stop from happening. But again, stay positive! MANY women have healthy momo babies. Dont let the bleak statistics scare you.

There is another site www.monoamniotic.org GREAT resource!

I wish you all the best and that a membrane is found! Good luck Momma!! :hug99:

 

QUOTE(jemisaac @ Jul 29 2008, 04:57 AM) [snapback]901885[/snapback]
I'm 16 weeks and my OB told me last week that I have mono/mono twins. I go see a perinatologist on Aug 12th. Sort of hoping that they find a membrane, but preparing for them not to because they only found one baby at 7+ weeks and the u/s diagnosing this was done at 15 weeks. We'll see though. There's still a chance. I've gone to that other website they mentioned here and it is helpful to read, but you can't register. I've tried every day for a week and contacted them, but there's some sort of error. I'm still learning about all this too. Hoping your diagnosis proves wrong.



I had the SAME issue... THANK GOODNESS FOR THIS SITE!!! I love it here at TS!

 

I am a member of monoamniotic.org. I posted on there asking if we are having trouble, I am waiting to hear back. I also posted my story on the parents club forum. Please PM me if any of you have questions.

 

I also had momo twins. They were 30 weekers -they're 20 months now and you would never guess they were preemies! I went in-patient for 24/7 monitoring at 26 weeks. Liek the others, I highly recommend monomaniotic.org. That website was a true lifesaver for me during my pregnancy!!! I read that they were having some issues with new people being able to join but they're in the process of fixing the problem...so hopefully those of you who are momo's will be able to join SOON. It is a very risky and scary pregnancy...but well worth it!! Just reading all the success stories will help alleviate some of the worry and give you hope.

Katherine
Mommy to:
Penelope, 8/20/04
Charlotte and Lola, 11/30/06 (momos)

 

Our girls were monoamniotic also. It can be VERY scary to read stuff on the internet so don't. As others have already mentioned, monoamniotic.org is an excellent site were you can find a ton of support. I went inpatient at 28 weeks and my girls were delivered via an emergency c-section at 29 weeks and 2 days. We were very fortunate to be on continuous monitoring and had excellent doctors and nurses keeping an eye out for us! Hailey spent a total of 54 days in the NICU and Hannah 60. We had the usual preemie problems... Hannah had a brain bleed and pda (a valve in her heart that had not closed), and a small hole in her heart which we think has closed. They will be 6 months old next week and are doing great! They have come a very long way from 2 and a half pounds. I'm not going to lie, the whole thing can pretty stressful but you just have to hang in there and take care of yourself. I was told that laying different ways, etc. would not further entangle the cords, the babies are going to move regardless of how you are positioned. Like others have said, a lot of cases are misdiagnosed so hang in there! If you do have mono/mono twins, don't let anyone discourage you. It does get old explaining to people that these aren't like "so and so's twins..." I had so many people ask me why I had to have so many ultrasounds, why I had to be in the hospital... I got pretty good at summing everything up into a short answer. I wish you the best of luck.

 

MONOAMNIOTIC.ORG should now be fixed and accepting new members!!!

:yahoo: