I know I have posted about my fussy girl

Today...or I should say yesterday (it's now 1:15 am on Saturday) we discussed that maybe my baby was overstimulated, then we thought maybe she needed to eat more. Here is what happened...

This is going back to what I remember:

Thursday 12/27 9 pm (last bottle for night) - she drank 4 ounces
Friday 12/28 9 am (first morning bottle) - she drank 4 ounces but screamed through the last 2 ounces
1 pm - 3 ounces screaming through after drinking 2 ounces
5 pm - she wouldn't take a sip she screamed and wouldn't drink an ounce
Total that up and she only drank 7 ounces in 24 hours because she didn't drink again until:
Saturday 12/29 12:30 am she drank 3.5 ounces and screamed after without taking anymore

She is currently on Prevacid taking 1/2 of a 15 mg tablet a day and she has been taking for 10 days and seems to be getting worse then better. She has been to the doctor 5 times (once urgent care and another ER) and I even got a second opininon regarding her fussiness/reflux. When I call the nurse line to explain they say bring her in. I bring her in and they do nothing.

I spoke to a friend about this and she said it just doesn't sound right, who's daughter was a colic baby. She cries/screams during her waking hours from the moment she wakes up to bedtime. She said I need to make them do a more serious review/tests on her. I don't know what to say to them. They always tell me it's just colic. She sounds like she is in pain all the time but when I take her only once did a doctor see her act this way (which she said "good thing you're seeing the GI specialist that would drive me nuts"). How do I tell them something is wrong with her or am I overreacting? My mom says to tell them I want her admitted until they can rule everything out and they can see for themselves how she is.

Sorry this is so long. I just don't know what to do!!!! I am crying everyday over this and I am desperate now.

 

My first 2 kids were colic babies, and they dont cry all day with colic(or I've never heard of that anyway) They usually cried for about 2 to 4 hours and it always started the same time, right on the dot, but not all day. Does she seem hungry, like she wants to eat and just cant? Something definatlely seems wrong. Your mom is right, I would do exactly that, and you sound like your quite concerned, and let me tell ya, a mothers instinct is usually right. My dd had a reflux problem, it only hurt her when she was laying down, so we had to prop her up at night so she could sleep. I'm no doctor, but what your baby does, it dosent sound like this either. I am so sorry your having to go through this, and her, poor baby. I wish you and her the best, and I hope everythings ok, and no, your not overreacting one bit.

 

I'd definitely call a doctor.

Have you tried doing small frequent feeds with her? That's usually one of the first recommendations for reflux babies. It's just like when you're pregnant and have wicked heartburn and the first thing your doctor tells you is frequent small meals - exact same thing holds true for babies with heartburn.

:hug99: Poor little baby! Hope she gets some relief soon.

 

I would call the doctor. My girls were colicky and didn't scream only after eating. They would cry starting around 3-4 p.m. everyday and it lasted until 11 p.m. - 1 a.m. It was like an "I'm just so inconsolable" cry. It was AWFUL. They also had reflux which was a different cry. They would arch their back and writhe as if they were VERY uncomfortable.

 

Is she gaining weight? I would definitely call the doc if she only ate 7 ounces all day. If she is gaining weight they may need to up the med dose, or if she isn't, refer you to a pedi GI, sounds like this may be more than reflux and could be GERD.

 

Mine were colic babies and they DID scream all day sometimes ... however, the only thing that STOPPED them from screaming was nursing them. They ate and ate and ate. I don't know how many ounces they got b/c I was breastfeeding, but I swear I nursed them all the time until my "other twins" were sore and cracked b/c it was the only thing that would calm them both down at the same time. They gained weight like gangbusters, too.

This doesn't sound like colic to me. Poor baby. I would cry for her too. What did the GI specialist say? Is there another formula you could try ... or are you giving her EBM? Could it be a milk protein allergy? Any blood in the poop or is she vomiting? I hope you can find a resolution soon! I'm so sorry you (and she) are having to deal with this!

 

Do they give you an opportunity to say all that you said just now? Because just reading that, someone's got to listen. Does she ever projectile vomit afterwards? A family member of mine, her baby had pyloric stenosis and had many of the complaints you had but also included projectile vomiting.

Either way, they're being ridiculous not doing more and you have every right to hound them. The best of luck and big hugs to you. This is all hard enough without no one listening....

 

Gosh, I am sorry you are going through this! My daughter, Leah, was like this. She was in and out of the doctor and ER all the time. She is an extreme story, though, but thought I'd share anyway. What ended up happening is she lost a lot of weight (a pound in a week!) and she was admitted into the hopsital for further review and tests. 3 weeks of tests - Endoscopy, Barrium Swallow, Feeding specialist reviews, Upper GI Series - All came up normal. They even did a chromosomal screening to see if there was a genetic issue as to why she stopped eating (She stopped eating completely and was on NG tube feeds in the hospital). That came up normal. So, we are at a dead end...She came home on the NG tube and then a month later got a G-tube. She is 100% G-tube fed now and seeing a feeding specialist. She used to eat okay when she was born, but it dwindled off to nothing by the time she was 3 months old. My son was already 13 pounds and she was not even 8 pounds - Yes, it was that bad! Now, she is 7 months old and 18 pounds and reall thriving off G-tube feeds. Still, we have no clue why she won't eat. She actually had an MRI done 4 days ago and have an appt. to review the results on Wednesday....Every other test came up normal, so I bet this one will too. I really don't know...She does have severe reflux though and is on Prevacid, Zantac, and Reglan.

Anyway, I hope you find the answers to your daughter's eating problems. I doubt it'll come down to what happened to my DD. Not very common. I encourage you to seek out a speech therapist (they are also feeding specialists!) Therapy really helps! Also, keep an eye on the weight gain/loss. If she consistantly loses weight, I'm sure the doctors will take you more seriously. Good luck!! :love0028:

 

I would definitely call the doctor and request a referral to a Pedi GI Specialist. Something is going on with her, possibly digestive track issues. Colic is not all day long. My oldest had it and it was at night for 4 hours (ugh and it was awful!) and the reflux was after eating for my boys, esp. Kevin. You have some god advice here. I hope things get better. :hug99:

 

I didnt read other posts... but is she on formula? Could it be she is allergic to the formula?
Thats what happened with my cousin, they kept telling my uncle she was colicky but as soon as they switched formula (to soy I believe) and she was fine, no more crying/screaming and slept good.

Just a thought.
Good luck!! Poor girl!

 

Since the docs dont seem much help to this point I would try switching formulas and not necessarily to soy. Some friends of mine have a 1 month old who they could tell was in gastric pain. They had to try several different formulas before finding one he could tolerate well. Not every formula is for every baby. You might have to try several before finding the right one. If she is losing weight she needs to see the doctor again and be re-evaluated. One other thought: could she be constipated?

 

QUOTE(twingma @ Dec 29 2007, 02:47 PM) [snapback]550021[/snapback]
Since the docs dont seem much help to this point I would try switching formulas and not necessarily to soy. Some friends of mine have a 1 month old who they could tell was in gastric pain. They had to try several different formulas before finding one he could tolerate well. Not every formula is for every baby. You might have to try several before finding the right one. If she is losing weight she needs to see the doctor again and be re-evaluated. One other thought: could she be constipated?


She is on Alimentum and that's about as good as you can get. No constipation, poop is pretty runny since they are on the Alimentum which docs say is okay.

She seems better today. I wore her in a sling for a few hours and then had her nap for an hour before her 12:00 feeding. She's eaten fine today. But, now she has been sleeping since...almost 3 hours. I have her swaddled. I posted a question if swaddling during the day would be a bad thing since I swaddle her at night. I'm just trying to rule out if she is just a high-maintenace baby other than something more serious.

Thanks so much for all of your posts. It's nice to know you have someone listening.

 

BIG hugs to you. I wish I could help but just wanted to say I am thinking of you and hoping tomorrow is better. Please be sure to take care of yourself as this is not only hard on her - but also on her mommy!

My babies pretty much screamed all of the time until they were around three months. They were overtired, overstimulated, hungry, reflux, you name it. The thing is, there was not much that I could do for them besides love them and hold them and wait it out. I hope that you find out what is wrong and if it is nothing, I hope that it gets easier every day. My son is also on Alimentum but it truly did not help his reflux and is on AXID for that. My daughter is on Enfamily A.R. which really seems to help her reflux; however the Prevacid definitly made her worse. She got better when switched to AXID as well. AXID also does not have alcohol in it and that always makes me feel better.

Sending good vibes your way!!!

Amy

 

I didn't even read the other comments b/c I know EXACTLY what is wrong b/c I went through it and it is terrible. Now that you listed your schedule and how she cries and doesn't want to eat type attitude I know what that's like. Switch formulas. I went through 3 months of H*LL b/c no one would do anything (nurses, doctors) so I finally called my pedi and told him I was changing pedi and that I was going to put her on soy formula. (we already tried alminteum-switched off of neosure). I promise that after my babies had their first soy formula bottle they were fine. I felt so guilty for not realizing it sooner and I don't know why it is such a big deal for pedi not to tell you to switch. Some babies have a hard time breaking down milk and alminteum (forgive my spelling) is already broken down but soy is just so easy on the body to digest. I would SERIOUSLY tell you to try it. You can always go back to Alminteum. (switched to Alminteum and the fussiness was less but still they weren't acting like babies should, tried Similac Isomil and it worked fabulously!!) BTW, my babies were also on prevacid which helped.

Sorry this is a bit rambling but I just remember how it felt and how your poor baby feels. Please update us and PM me if have any questions!! Good Luck!!