Club Feet - 24 weeks pregnant

We have just been told that our baby girl looks to have club feet. We are slightly floored and need information beyond what the doctor is giving us. Does anyone have any experience with this?

Thanks,

Nicole

 

I had a friend whose baby was 'diagnosed' with club feet all through her pregnancy. He was born perfect!!!! Just wanted you to be aware that ultrasounds may not show exactly what you see. I would prepare and educate yourself, but be aware that it could be wrong. :hug99:

 

There's a good site that talks about it: www.clubfeet.net
But I agree with JicJac, ultrasounds may not show everything!!!
Good luck!

Mom2B

 

I have a friend who's baby was born with club feet (they were expecting it). She had the cast from about 3 weeks on, then moved on to the braces, and did just fine. She is now a little over one, and is perfect! You would have no idea she was born with them.

 

QUOTE(aloha7778 @ Mar 14 2008, 10:43 AM) [snapback]668938[/snapback]
We have just been told that our baby girl looks to have club feet. We are slightly floored and need information beyond what the doctor is giving us. Does anyone have any experience with this?

Thanks,

Nicole


We were floored when our DD was diagnosed with bilateral club foot when I was 19 weeks. I was pretty upset about it and just wanted her to be normal. Her feet were pretty severe, especially the left. We chose to take her to Scottish Rite for treatment and they did a great job. We had a choice between serial castings (Ponsetti method) or a daily bracing and stretching therapy. We chose the castings b/c she was a micropreemie and we had to minimize taking her in public places.

She got a new set of casts every week or two weeks for six weeks. The last casts were on for a couple of weeks because the did the heel-chord lengthening. After that, Halle wore the Ponsetti braces 23 hours a day for 3-4 months, then night time only until she turned three. Today her feet look completely normal!

Julie
mom to Halle 1/4/05 @ 23w5d due to IC
b/b twins due 8/23/08

 

Hopefully these positive outcomes that have been posted are reassuring to you. I know you must be worried, but hang in there. I will pray for you and your little girl. Lisa :hug99:

 

You are in my prayers!! There is so much they can do now a days. Good-luck!

Tina

 

One of my boys has aclub foot. It is so correctable now that she won't have any problems with it later in life. We adopted our boys and did not know he had a club foot until delivery so I was not able to research it at all. But I would do so much different if I could. I have found a great site that has steard us in the right direction now. Please check out this site It has WONDERFUL people and they use the Ponseti method. But be very careful, this is what we did not know, many say they use the Ponseti method but don't follow it and can do more hard then good. That is part of your problem, but my son was not harmed, just took longer to correct then it should have.
health.groups.yahoo.com/group/nosurgery4clubfoot

There are link and much good information. It is a VERY active group.

The site for Dr. Ponseti is www.ponseti.info He is the Guru of club foot.

Also a GREAT Site from a mom who has 3 boys with club feet. The first had the 'wrong' treatment and the other 2 have been with Dr. Ponseti from day 1. She is also very active with the yahoo group. six-feet.com

 

A friend of mine had a son born with a club foot. He is 18 months old and runs around all over the place. She also had it diagnosed through an u/s. She did her research and had applied to the Shriners before he was born. The Shriners were able to help out with some of the costs. They had to travel to a large city to get the casts, etc. Sounds like you are trying to do your research - that is the best thing you can do.