Hello everyone! Most of you aren't ppl I recognize but many I do. I spent some time in the expecting forum during my pg. Things got pretty crazy around here what with delivering the girls early and all but they've started to settle down. Kind of, I guess! I wanted to come back earlier to check on those who I was familiar with, but honestly it was too hard. I was having a difficult time coping, much to the surprise of those who know me IRL, but I think I just needed some time by myself to cope with it all. I know I could have gotten the best support here in general, but I got too depressed. Fortunately I met an AWESOME! TS mommy who met me at the hospital and gave me quite a boost! She still does I plan on posting my story in the TTTS thread because I believe it will be more helpful there. I know when I was looking for information and support I read through that entire thing quite a few times, so if anyone else is looking who has TTTS, they will more likely find it there. But basically, I was treated at 18 wks with fetal laser therapy by Dr. Quintero and delivered my girls at 29w6d due to multiple reasons. They are faring pretty well overall. Our donor twin has congenital heart disease related to the TTTS, as well as some brain damage also r/t TTTS. We will only know how she does as she grows and develops. EI is coming to assess the girls tomorrow afternoon. Anyway, I just wanted to reintroduce myself. Can't wait to get this going again!
:welcome: back Danielle. Good to see you posting again. :hug: That TS Mom you are talking about is pretty special
Welcome back Danielle, I remember you! I wondered how everything was going!! :hug: Good to see you back here and so glad the girls are doing so good all things considering! :hug:
Welcome Back Danielle!! :hug: I"m glad things are settling down (as much as they can with twins :lol: ) and I'm glad you have that special TS person. :wub: She is pretty special. :friends:
It's not letting me edit, but I meant my recipient twin is the one with the issues. Thanks for the welcome!
:clapping: I'm so glad you are back!! Also glad the girls are allowing you some computer time! Look forward to hearing how EI goes! It's really hard to determine much this early, but I found the reevaluation at 9 months really helpful. :hug:
Yeah, they said that. Eve qualifies automatically due to her bw of 1# 15oz, and Lia would qualify automatically had we gotten the MRI, but the therapist said we could always reevaulate at 6 months if she didn't qualify yet. The thing is, Lia is doing really well (in my eyes--excellent head control, starting to smile) except for this posturing thing she does where she arches her back and stays stick straight. She won't just sit on my lap, you can't "bend" her much of the time. It is possible that it's related to the reflux, though. We'll see.
Danielle, welcome back!! I'm glad to hear from you that you and your babies are doing well, although we have been getting little updates from a very sweet little birdie. :wub:
It is so nice to meet you and hear your story. It sounds like you have been through so much. You sound so strong. I admire you very much. Your babies are beautiful.
Hi Danielle, welcome back to FY! Your babygirls are just adorable!! Lots of luck with their assesment :hug:
Hi, Danielle! I know you're not familiar with me, but I have to admit that during my pregnancy, I constantly read posts and replies about many subjects in the expecting twins forum. So I recognize your username from those days. I definitely understand the not being able to cope sometimes. I didn't post on the forums during my pregnancy because I was always so weighted down by the constant worries about my babies. My boys were born at 28 weeks, 0 days due to IUGR. My whole pregnancy was under close surveillance for TTTS, due to my little Will being a very slow grower in the womb. We were on constant stand-by to head to Tampa to see Dr. Quintaro for the TTTS laser surgery. I remember the heart-wrenching ultrasounds every other day watching the umbilical blood flow and remembering the doctors telling me a week before Christmas that my little will could, as they put it, 'succumb' any minute. I never want to hear terms like 'absent diastolic flow' and 'possible loss' again. I always feel so selfish when I think back on my pregnancy and think to myself that I wish I was able to enjoy at least one week of it. I still worry about my boys' futures and what lies ahead, but every time I hold them, I catch myself either crying or almost about to cry thinking of not holding them both. My little ones just had an appointment yesterday with developmental specialists that will track their progress and refer us to physical therapy, speech therapy, etc. as they need it. From yesterday's appointment, it sounds like we're in for at least a couple of years of thorough evaluations. It's so frustrating not knowing what the next 6 months, year or 5 years is going to hold for my boys. I know the doctors are doing the best job they can, but hearing 'well, we'll just have to see what needs to be done as they grow and develop' is so frustrating. If you ever need to vent, I'm here. (Oh, and I know all about the fun reflux problems, too. Just ask me about my megapukers one day ) Good luck with your beautiful girls!
